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Cancer Genetics SIG's Favorite Links

ONS Board of Directors
National Coalition for Health Professional Education in Genetics
National Society of Genetic Counselors
International Society of Nurses in Genetics
Myriad Genetics, Inc.
Myriad: Genetic Testing for Hereditary Cancer
City of Hope: Department of Clinical Cancer Genetics
US Surgeon General Family Health Portrait
NCCN: Guidelines for Detection, Prevention, & Risk Reduction of Cancer
Genetic Nursing Credentialing Commission
ONS Genetic Toolkit PDF
Brigham & Women's
Genetic and Rare Diseases Information Center (GARD)
Genetic Testing Pamphlet
web-based genetics education website for healthcare professionals
PDF of web-based genetics education website for healthcare professionals
DECIPHER database
PDF of Genetic Testing Pamphlet
"Useful Tools For Cancer Genetic Counselors" Must be NSGC member to access site
Secretary's Advisory Committee on Genetics, Health, and Society
Essential Nursing Competencies and Curricula Guidelines for Genetics and Genomics - Slide Set
Resource Page on public health genomics
Genetic Education Videos: Gene Screen Trough Genetic Alliance
The Value of Genetic and Genomic Technologies:

Notes from the Cancer Genetics SIG Leaders


August 30, 2014

Cancer Genetics SIG

On this SIG Virtual Community page, you will find information pertaining the Cancer Genetics SIG. Here, you can view a myriad of resources, download and complete pertinent documents, join in our discussions and much more. Welcome to our Cancer Genetics SIG Virtual Community.

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Click here to sign up to receive announcements via e-mail. You will NOT receive any information from the Cancer Genetics SIG membership unless this has been clicked.

Colon & Rectal Tumors Constitute a Single Type of Cancer

Click here for more information

ANCC Looking for Content Experts Application Due December 18, 2013

ANCC looking for Content Experts for the new Genetics Nursing and Genetics Nursing Advanced Certifications.  Please visit the ANCC website to download the Content Expert Application Form:

NCHPEG Fall 2012 Newsletter

National Coalition for Health Professional Education in Genetics Fall 2012 Newsletter

NCHPEG Cease Operation August 31, 2013

The National Coalition for Health Professional Education in Genetics (NCHPEG) will cease to operate effective August 31, 2013.

NAPBC Letter Regarding Genetic Counseling

CIGNA recently initiated a policy to require genetic counseling as a requirement to genetic testing for cancer predisposition.  However, physicians and nurses were not included as approved providers for the counseling.  Attached is the American Society of Clinical Oncology (ASCO) response to this policy.  Jean Rosiak, the ONS liaison to the National Accreditation Program for Breast Centers (NAPBC) informs us that she is working with NAPBC to compose their response.

Graduate Competencies Draft Posted on ANA Website

Dr. Carol Bickford, Senior Policy Fellow with the American Nurses Association's  Department of Nursing Practice and Policy, informed us that the "Essential Competencies in Genetics and Genomics for Graduate Nurses" draft document is now posted on the American Nurses Association website for public comment. The draft document link  is posted at  The specific link for the document itself can be found at       


The closing date for public comment is September 24, 2010. Comments are to be directed to

City of Hope's CME/CEU accredited Intensive Course in Cancer Risk Assessment

They are now accepting applications for a limited number of openings.


Here are brief details 

Orientation: 11/22/13, 8-10 AM (PST) 

Phase 1  Distance Learning: 11 weekly Web Sessions/5 Case Conferences 12/6/13 -2/21/14, 8-10 AM (PST) 

Phase 2  Workshops: City ofHope,  2/25-28/13

Phase 3  Post-professional development : Web Conferencing (1 Year),

Application Deadline: 8/16/13


New online education on cancer risk assessment from The Jackson Laboratory (7/1/14)
This is a free, online educational program that helps health care providers improve their cancer risk assessment and prevention practice through targeted family history screening. The program is for practicing primary care providers as well as students and residents. Highlights of the program include:
• Strategies to use family history to identify patients at increased risk of a genetic syndrome, such as hereditary breast and ovarian cancer, for earlier or more frequent cancer screening.
• Application of new USPSTF guidelines recommending family history screening for all patients with a family history of breast and ovarian cancer.
• Learning through 15-minute interactive Web cases and downloadable point-of-care tools that can be used in the clinic.
• Free CME.

Here is the link to the web program (

City of Hope Cancer Genetics Events (6/17/14)
Please tell your friends and colleagues that the 2015 Intensive Course application is now live at New funding has allowed us to update the curriculum and include distance-only options:
• Track 1: Full Spectrum Multi-modal Training (12 weeks distance learning and Web conferences, followed by four days of on-campus workshops)
• Track 2: Full Spectrum Distance-only Training (12 weeks distance learning and Web conferences only)
• Track 3: Breast-ovarian Sub-specialty Training (Distance learning and Web conferences only)
• Track 4: Gastrointestinal Sub-specialty Training (Distance learning and Web conferences only)

Your colleagues who may be interested can find additional information, along with the course application, on the CCG Website:

Also: Save the Date for next year's City of Hope/University of Chicago Cancer Genomics Bootcamp/Update Conference: Friday, February 27th, Saturday, February 28th, 2015 at City of Hope. We guarantee to incorporate MORE case presentations and curbside consults, and we welcome your suggestions about what you'd like us to address in the 2015 session.

Please feel free to contact Kathy at if you have questions or suggestions regarding the 2015 Intensive Course or Cancer Genomics Update Conference.

IC 2015 application now open, & Genomics bootcamp Save-the-Date

DATE Friday, June 13, 2014
TIME 3:10 pm – 3:15 pm PDT

NEW Risk Assessment Course (5/19/14)
The City of Hope is now accepting applications for our annual CME/CEU-accredited Intensive Course in Cancer Risk Assessment, which has a new curriculum and distance-only training options.

Web Orientation : Nov. 14, 2014
Phase 1 Distance Learning: Nov. 21–Feb 2, 2015
Phase 2 on-campus workshops at City of Hope (Full-Spectrum only): Feb 24-27, 2015
Phase 3 12+ months professional development, clinical & research support (all tracks)

Application Deadline: Aug. 1, 2014

Webinar 5/28/14 Breast Cancer Genetics (4/29/14)
ISONG Webinar
May 28, 2014
12:00 - 1:00pm EDT (New York)
Breast Cancer Genetics
Then and Now: Impact on Risk Assessment and Clinical Care
Deborah J. MacDonald, PhD RN APNG
Genetics/Genomics Cancer Risk Consultant

Dr. Deborah MacDonald is in private practice as a genetics/genomics cancer risk consultant. She has worked in genetic cancer risk since 1992, first at the Massachusetts General Hospital in Boston and then from1997 until late 2012, at the City of Hope Comprehensive Cancer Center in Duarte, CA where she helped establish the Division of Clinical Cancer Genetics, was promoted to Assistant Professor in 2008, and served on the National Comprehensive Cancer Network's Breast Cancer Risk Reduction Guidelines panel from 2001-2012. For 2013, she was a Senior Clinical Advisor (contractor) to the National Cancer Institute, Center for Cancer Research, Genetics Branch. Dr. MacDonald is an author on more than 50 cancer genetics publications, was a founding member of the National Society of Genetic Counselors and the Oncology Nursing Society's cancer genetics special interest groups, and has held several ISONG positions including member-at-large, newsletter editor and past president (1999). She has been credentialed in genetics (APNG) since 2001.
This webinar introduces breast cancer risk assessment from the beginning of BRCA gene testing in the mid-90's to the emerging use of multi-gene panels. Also discussed will be how genetics and genomics influences breast cancer screening, strategies for reducing hereditary breast cancer risk, and the diagnosis and treatment of breast cancer.

Participants attending the entire webinar, completing and returning the evaluation tool will receive 1 continuing nursing education contact hour.
Who Should Attend?
RNs new to breast cancer genetics and those who desire to learn about current strategies for genetic testing for breast cancer risk and the influence of genetics/genomics on the cancer care continuum would benefit from this webinar.
1. After this presentation, attendees will be able to state at least 3 key indicators of hereditary risk for breast cancer.
2. After this presentation, attendees will be able to discuss how genetic testing to identify breast cancer risk has changed over the past 20 years.
3. After this presentation, attendees will be able to describe how genetics and genomics influences breast cancer screening, risk reduction, diagnosis and treatment.
Space is limited, reserve your seat now.
The cost is $25.00 for ISONG Members / $50.00 for Non-members.

Register at

This learning activity has been developed in collaboration with the University of Pittsburgh School of Nursing.
The University of Pittsburgh School of Nursing, is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation. An unrestricted educational grant was provided by
Myriad Genetics.

ANCC requesting genetics experts (12/16/13)

Be a part of the future of nursing! We are currently recruiting Content Experts for the new Genetics Nursing and Genetics Nursing, Advanced Certifications. You have been identified as someone who might be willing and qualified to help in the development of these two new certifications. If so, we encourage you to pass this message along to anyone you might know of who might be interested in this opportunity and, possibly, to apply yourself.

If you are interested in this opportunity and would like to be added to our Content Expert Registry so that you will receive notifications when upcoming meetings and opportunities scheduled please visit our website at to download the Content Expert Application Form:

Content Experts who are deemed eligible for particular panels and upcoming meetings may be invited to participate in these meetings, which are held in Silver Spring, Maryland. If you are invited to take part in any of these opportunities you will receive:

• Paid travel expenses related to the meeting including transportation, hotel, and a per diem;
• A 15 hour reduction in the number of contact hours required to renew your certification;
• An opportunity to network with your colleagues from across the country.

For more information about being a Content Expert with ANCC or the Content Expert Registry please visit our website:

There are several Content Expert opportunities associated with these certifications. The initial development meeting dates, as scheduled, for the two certifications are listed below. The application packet must include:

• A completed and signed Content Expert Application Form
• A current resume or curriculum vitae
• A letter of recommendation
• A copy of your current job description

We will need to receive all of your application documents by December 20, 2013.

Your completed application packet may be returned via email to or by fax to 301.628.5004.

If you have any questions, do not hesitate to send us a message at ANCCVolunteer@ana.orgor call us at 1.800.284.2378 and reference the "Genetics Content Expert Recruitment".
ANCC Certification Services Staff

Scheduled Initial* Meeting Dates for Genetics Nursing Portfolio:

Logical Job Analysis I – January 27-29, 2014
Logical Job Analysis II – April 9-11, 2014

Scheduled Initial* Meeting Dates for Genetics Nursing, Advanced Portfolio:

Logical Job Analysis I – March 19-21, 2014
Logical Job Analysis II – June 11-13, 2014

*Please note that these are only the initial development meetings. Applicants who meet the qualifications to join the Content Expert Registry and are not selected for these meetings will receive additional recruitments for other opportunities and their attached meeting dates.

Surgeon General's New Family Health History Tool

On January 13, 2009 the U.S. Department of Health and Human Services released an updated and improved version of the Surgeon General's Internet-based family health history tool.  Read more about the history tool.

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Request for Information (RFI) on the NIH Plan to Develop the Genetic Testing Registry

Comments are being requested ASAP in regards to the NIH plans for a genetic testing registry.  Please visit the link below for details about the proposed data elements.  and additional details at

Please make sure your voices are heard so that appropriate information is available to inform your patients decisions.


The last decade has seen tremendous advances in our knowledge of the genomic and genetic factors involved in health and disease.  This increased knowledge has been accompanied by a rapid rise in the availability of genetic tests.  Although more than 2,000 genetic tests are available, there is no single public resource that provides information about the validity and usefulness of these tests.  The NIH believes that transparent access to such information is vital to facilitate research and to enable informed decision making by patients, caregivers, health care providers, clinical laboratory professionals, payers, and policy makers.  Therefore, the NIH is initiating the development of the GTR, an online resource that will provide a centralized location for researchers, test developers, and manufacturers to voluntarily submit information about genetic tests such as their intended use, validity, and utility.  The Registry will serve as a resource for health care providers and patients interested in learning about the tests and easily locating laboratories offering particular genetic tests.  By using standard identifiers for genetic tests, GTR can facilitate Health Information Technology (HIT) exchange.  The GTR will be a repository of information about genetic tests, not a repository of test results.

On March 18, 2010, the NIH announced that it would be creating the GTR (see  This RFI notice is part of the public consultation process referenced in that announcement and described on the NIH GTR website:

Final Draft of Cancer Program Standards Available for Public Comment

The American College of Surgeons Commission on Cancer (CoC) is in the final stages of compiling its new standards manual: Cancer Program Standards 2012: Ensuring Patient-Centered Care, which is scheduled for release in July 2011. Diane M. Otte, RN, MS, OCN®, the ONS liaison to the CoC, reports that the new standards focus on quality, patient-centered care, addressing key issues such as psychological distress, patient navigation, palliative care, and survivorship, among others.

The standards continue to be open for public comment while the CoC pilot tests them in 50 different survey sites. To provide feedback, use the 2012 Cancer Program Standards wiki on the CoC website.

To learn more about the revised standards, plan to attend a session at the ONS Annual Congress in Boston, MA: “New Commission on Cancer Standards: Demonstrating Outcome Measurement Through Multidisciplinary Care,” scheduled for April 28 at 3:45 pm. Otte will be presenting with Luana Lamkin, RN, MPH, and Frederick Greene, MD.

Otte will also be available to discuss the standards at the Management and Program Development SIG meeting scheduled for Saturday, April 30, at 10:30 am.

The CoC will use several methods to educate and disseminate the standards, including a webcast series scheduled for April, YouTube videos dedicated to each of the 34 standards in August/September, and use of a new Best Practices Repository to be available in September. The guidelines will be effective beginning January 2012.

The CoC Accreditation Program is a voluntary commitment designed to encourage hospitals, treatment centers, and other facilities to provide quality care. Programs undergo evaluation and review every three years. According to its website, more than 1,480 CoC-accredited programs diagnose and treat 80% of newly diagnosed patients annually.

The CoC’s Cancer Program Standards are updated every 5-7 years to reflect changes in cancer care. The current standards were last completely revised in 2004.

SIG Posters for Congress

Need help creating a poster for your SIG for Congress? Check out these great resources and templates to share the work of your SIG!

Also, a ONS Poster Guide was developed with some great tips.

ONS will reimburse each SIG $100 to print and display a poster at Congress. This is a great opportunity to share the activities and goals of your SIG with the membership. The following is a listing of printers who charge reasonable rates for printing posters.

Place poster print via your local FedEx Kinko’s and have the order processed at the FedEx Kinko’s nearest Congress. 

Use the QR code maker for your poster 1) SIG Leadership Contact information 2) 2nd QR delivers a link directly to the SIG Virtual Community and the poster.

The following is a listing of templates and tips:

Poster Sample from ONS with Tips and Recommendations

Template for a 36"x60" Poster

Template for a 36"x72" Poster

Template for a 30'x40" vertical Poster

2014 SIG Leadership Workshop





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