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Cancer Genetics SIG's Favorite Links

ONS Board of Directors
National Coalition for Health Professional Education in Genetics
National Society of Genetic Counselors
International Society of Nurses in Genetics
Myriad Genetics, Inc.
Myriad: Genetic Testing for Hereditary Cancer
City of Hope: Department of Clinical Cancer Genetics
US Surgeon General Family Health Portrait
NCCN: Guidelines for Detection, Prevention, & Risk Reduction of Cancer
Genetic Nursing Credentialing Commission
ONS Genetic Toolkit PDF
Brigham & Women's
Genetic and Rare Diseases Information Center (GARD)
Genetic Testing Pamphlet
web-based genetics education website for healthcare professionals
PDF of web-based genetics education website for healthcare professionals
DECIPHER database
PDF of Genetic Testing Pamphlet
"Useful Tools For Cancer Genetic Counselors" Must be NSGC member to access site
Secretary's Advisory Committee on Genetics, Health, and Society
Essential Nursing Competencies and Curricula Guidelines for Genetics and Genomics - Slide Set
Resource Page on public health genomics
Genetic Education Videos: Gene Screen Trough Genetic Alliance


Notes from the Cancer Genetics SIG Leaders

Welcome



February 8, 2010




Cancer Genetics SIG

 On this SIG Virtual Community page, you will find information pertaining the Cancer Genetics SIG. Here, you can view a myriad of resources, download and complete pertinent documents, join in our discussions and much more. Welcome to our Cancer Genetics SIG Virtual Community.

Join us on Facebook

Announcements
Click here to sign up to receive announcements via e-mail.   You will NOT receive any information from the Cancer Genetics SIG membership unless this has been clicked.

 



Certification Challenge

Join our Cancer Genetics SIG colleagues in this challenge to increase the number of ONCC Certified nurses ins our SIG’s membership. The stats as of 4/15/09 are in the link below. Check out our SIG’s current standing, in the link below, and encourage certification to your colleagues, especially those in our SIG. If our SIG has the highest percentage increase we will be recognized at the 2010 Congress SIG Planning & Networking meeting. Watch for updates on the main SIG virtual community and on our VC site!! We need YOU!

For certification information go to http://www.oncc.org/publications/news.shtml.

Congress 2009 Flier (2)



NHGRI Congratulation Letter to Eric Green

 

Congratulation Letter to Appointment as NHGRI Director - click here.



ANA & ISONG Co-Publish Genetics and Ethics in Health Care: New Questions in the Age of Genomic Health

ANA and ISONG Co-Publish Genetics and Ethics in Health Care: New Questions in the Age of Genomic Health Nursesbooks.org, the publishing program of the American Nurses Association (ANA), in collaboration with the International Society of Nurses in Genetics (ISONG) has just released a book exploring the current ethical challenges associated with advances in genetics technology and genomic health care from a wide cross-section of cultural, racial, religious, and technical perspectives. While these advances are at the cutting edge of understanding the causal factors of health and illness, they also demand that we acknowledge and respect the deeply complex and diverse moral and ethical concerns that can impact the decisions of individual patients and the lives of their families and communities.

http://nursingworld.org/Books/pdescr.cfm?cnum=24#9781558102637

To order a copy of the book at a discount from ISONG while supplies use this order form.

Kathleen Calzone, RN, MSN, APNG, FAAN Senior Nurse Specialist (Research) NCI/CCR/Genetics Branch 8901 Wisconsin Ave. Building 8, Room 5101 Bethesda, MD 20889 301-435-0538 Fax: 301-402-4471



Surgeon General's New Family Health History Tool

On January 13, 2009 the U.S. Department of Health and Human Services released an updated and improved version of the Surgeon General's Internet-based family health history tool.  Read more about the history tool.



Announcements

PBS show on genealogy and genetics (2/5/10)
What made America? What makes us? These two questions are at the heart of the new PBS series Faces of America with Henry Louis Gates, Jr. Harvard scholar Henry Louis Gates, Jr. again turns to the latest tools of genealogy and genetics to explore the family histories of 12 renowned Americans. The series premieres nat......ionally Wednesdays, February 10 - March 3, 2010 from 8-9 p.m. ET on PBS.

Genetic Risk Opportunity (1/25/10)
Immediate Opening for Genetic Cancer Risk Counselor (APN or GC)in Sunny Southern California!

The Division of Clinical Cancer Genetics at City of Hope has an immediate opening for a Genetic Cancer Risk Counselor to provide genetic counseling to individuals and families diagnosed with or at risk for hereditary cancer. This is an exciting opportunity for someone who is academically inclined and interested in working in a stimulating multidisciplinary clinical and research setting that supports professional development. A significant component of this position will be dedicated to the design and conduct of cancer genetics research focused on clinical and behavioral outcomes for underserved Latinas. The candidate will join a team of cancer risk counselors and oncogeneticists, including physicians and doctoral nurses participating in an NCI-funded cancer genetics career development program. The candidate will also have the opportunity to teach and mentor through a multifaceted cancer genetics education program. City of Hope offers a competitive compensation package and the pride of being a part of a renowned Comprehensive Cancer Center.

Minimum Education: MS in Nursing or Genetic Counseling.

Preferred Skills and Experience: Cancer risk counseling/cancer genetics; bi-lingual Spanish preferred; experience working in a multidisciplinary team setting; ability to work on clinical research projects with minimal supervision; teaching, mentorship. Software skills: Microsoft Word, Excel, PowerPoint, Progeny pedigree and/or statistical program database knowledge a plus.

Please send Letter of Inquiry and CV to:
Bernadette Pabillare, Administrative Manager
Clinical Cancer Genetics
City of Hope
1500 E. Duarte Road, Duarte, CA 91010
Telephone: (626) 256-4673, ext 64067; email bpabillare@coh.org


Announcements (1/11/10)
NEW BOOKS

Francis Collins, director of The National Institutes of Health is unable to discuss or promote his second book, which came out today. The book is titled, "The Language of Life: DNA and the Revolution in Personalized Medicine".
Collins' first book is "The Language of God."

Public Health Genomics: The Essentials
by CDC. For more information please go to:
>http://www.researchandmarkets.com/product/702099/public_health_genomics

CONFERENCES
October 16-19, 2010, Ann. Intern. Soc. of Nurses in Genetics Conference, Dallas, TX, USA See: www.isong.org/

COMMUNITY GENETICS NETWORK
I suggest becoming a member of this network, which keeps you updated about current research, publications, and conferences worldwide.
The aim of the international multidisciplinary community genetics network is to facilitate communication between all those working in the field of community genetics (and genomics). To become a member, just send an e-mail mentioning this desire to commgennet@gmail.com

ONLINE RESOURCES
UK Journal Nursing Times- which has genetic educational modules
ARTICLES
"Understanding the role of genetics and genomics in health 1: background" and "Implications for practice".

Both the articles and the resource are free to access from the Nursing Times website at http://www.nursingtimes.net/nursing-practice-clinical-research/clinical-subjects/genetics






New Online database-Nutrigenetics (12/23/09)
I just saw this new database. There is a fee to have access. But basically it seems to be an online database that provides access to professional articles through PubMed that focus on the interplay between genetics, health, and the environment.

However, I think you would get the same results using PubMed directly.
If anyone has more information about the benefits of this site, feel free to share it.

www.nutrigenetics.net
For free trial access, use "Free" as username and "Trial62" as password.

ALK gene mutation and Neuroblastomas (12/22/09)
Go to http://www.philly.com/philly/health_and_science/79476802.html
to learn more about the advances researchers at Children's Hospital of Philadelphia have made in identifying mutations linked with neuroblastoma, and the current treatment in study.



Mentoring

It is a time to focus on the need for mentoring and to assure a brighter future. You can partricipate by becoming a mentor or mentee through the Cancer Genetics SIG Mentoring Program.

Did you know that the Cancer Genetics SIG provides a formal mentoring program for oncology nurse professionals? Joining is easy. To enroll, visit www.3creekmentoring.com/ONS to start the process.

Mentoring relationships officially begin once a mentee contacts a prospective mentor (through the online program) and both parties agree to a mentoring arrangement. These relationships are ongoing with the majority of communication occurring by email and through the online program. However, mentors and mentees may also connect in-person or by telephone (at their own expense) as deemed appropriate and convenient for them.

Mentoring relationships can be either short or long in duration. However, participants should be willing to make a minimum commitment of two hours per month to the program. If at anytime an arrangement is not meeting the desired expectations, a mentor or mentee can be paired with another member participating in the program.

Please direct any questions to membership@ons.org.



Volunteers for Haiti Relief Effort

National Nurses United, the nation’s largest organization of registered nurses, today activated its nationwide disaster relief program to recruit nurse volunteers to provide assistance to residents of earthquake-devastated Haiti. More than 4,500 registered nurses have responded in less than one day. Details are still being worked out, but those able to support the efforts of these nurses can get involved by signing up to volunteer or donate.



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