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Graduate Competencies Draft Posted on ANA Website |
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ONS National Election (1/16/12)
All Genetic SIG Members,
Remember to vote in the ONS National Election. The 2012 ONS National Election is open now through February 15 at 5pm EST! Read up on each of the candidates and listen to audio recordings, then access the ONS ballot and vote now! Please use your unique credentials (Member Number and E-Signature (your election passcode)) that you received by email or mail, OR, if you cannot locate your previous notice, you can retrieve your login information by going to https://www.directvote.net/ons/ and clicking “Need help logging in?” for immediate response.
The Genetics SIG will get a report of how many SIG members have voted in the election.
Cancer Program Standards 2012: Ensuring Patient-Centered Care from the American College of Surgeons (1/10/12)
Announcements
Cancer Program Standards 2012: Ensuring Patient-Centered Care from the American College of Surgeons includes new standards for Risk Assessment and Genetic Counseling.
http://www.facs.org/cancer/coc/cocprogramstandards2012.pdf
Updated Recommendations: Cancer Risk Assessment (12/13/11)
Updated Recommendations from NSGC on the essential elements of genetic cancer risk assessment, counseling, and testing.
http://www.springerlink.com/content/ax33415046874623/fulltext.pdf
Time to collect your family history! (11/23/11)
A reminder that tomorrow is a great chance to collect your family health history. It can save your life. More at qoo.ly/ipt
Alert! Genetics survey deadline, Nov. 21/Need your input (11/17/11)
You received an electronic survey, “Not just another survey/Help the Cancer Genetics SIG plan for the future” via Outlook on or near November 7th. We need your help to identify hereditary cancer practices and educational needs. Completing the survey will take 10 minutes or less. The survey will close on November 21st. Thank you for your help.
Patricia (Pat) Kelly, DNP, APRN, CNS, AOCN®, Coordinator, Cancer Genetics Special Interest Group (SIG)
Project Team Members: Lisa Aiello-Laws, RN, MSN, AOCNS®, Rose Bell, ARNP-C, MSN, OCN®, Catherine Belt, MSN, RN, AOCN® , Julie Eggert, RN, PhD, GNP-C, AOCN®, Jacqueline Hale, RN, APN C, AOCN®, APNG,
Jennifer T. Loud, RN, CRNP, DNP, Robin Stevens, ARNP, BC, OCN®.
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Surgeon General's New Family Health History Tool |
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Only group members have permission to view this page |
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Request for Information (RFI) on the NIH Plan to Develop the Genetic Testing Registry |
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Comments are being requested ASAP in regards to the NIH plans for a genetic testing registry. Please visit the link below for details about the proposed data elements. http://grants.nih.gov/grants/guide/notice-files/NOT-OD-10-101.html and additional details at http://www.ncbi.nlm.nih.gov/gtr/
Please make sure your voices are heard so that appropriate information is available to inform your patients decisions.
Background
The last decade has seen tremendous advances in our knowledge of the genomic and genetic factors involved in health and disease. This increased knowledge has been accompanied by a rapid rise in the availability of genetic tests. Although more than 2,000 genetic tests are available, there is no single public resource that provides information about the validity and usefulness of these tests. The NIH believes that transparent access to such information is vital to facilitate research and to enable informed decision making by patients, caregivers, health care providers, clinical laboratory professionals, payers, and policy makers. Therefore, the NIH is initiating the development of the GTR, an online resource that will provide a centralized location for researchers, test developers, and manufacturers to voluntarily submit information about genetic tests such as their intended use, validity, and utility. The Registry will serve as a resource for health care providers and patients interested in learning about the tests and easily locating laboratories offering particular genetic tests. By using standard identifiers for genetic tests, GTR can facilitate Health Information Technology (HIT) exchange. The GTR will be a repository of information about genetic tests, not a repository of test results.
On March 18, 2010, the NIH announced that it would be creating the GTR (see http://www.nih.gov/news/health/mar2010/od-18.htm). This RFI notice is part of the public consultation process referenced in that announcement and described on the NIH GTR website: http://www.ncbi.nlm.nih.gov/gtr/.
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Final Draft of Cancer Program Standards Available for Public Comment |
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The American College of Surgeons Commission on Cancer (CoC) is in the final stages of compiling its new standards manual: Cancer Program Standards 2012: Ensuring Patient-Centered Care, which is scheduled for release in July 2011. Diane M. Otte, RN, MS, OCN®, the ONS liaison to the CoC, reports that the new standards focus on quality, patient-centered care, addressing key issues such as psychological distress, patient navigation, palliative care, and survivorship, among others.
The standards continue to be open for public comment while the CoC pilot tests them in 50 different survey sites. To provide feedback, use the 2012 Cancer Program Standards wiki on the CoC website.
To learn more about the revised standards, plan to attend a session at the ONS Annual Congress in Boston, MA: “New Commission on Cancer Standards: Demonstrating Outcome Measurement Through Multidisciplinary Care,” scheduled for April 28 at 3:45 pm. Otte will be presenting with Luana Lamkin, RN, MPH, and Frederick Greene, MD.
Otte will also be available to discuss the standards at the Management and Program Development SIG meeting scheduled for Saturday, April 30, at 10:30 am.
The CoC will use several methods to educate and disseminate the standards, including a webcast series scheduled for April, YouTube videos dedicated to each of the 34 standards in August/September, and use of a new Best Practices Repository to be available in September. The guidelines will be effective beginning January 2012.
The CoC Accreditation Program is a voluntary commitment designed to encourage hospitals, treatment centers, and other facilities to provide quality care. Programs undergo evaluation and review every three years. According to its website, more than 1,480 CoC-accredited programs diagnose and treat 80% of newly diagnosed patients annually.
The CoC’s Cancer Program Standards are updated every 5-7 years to reflect changes in cancer care. The current standards were last completely revised in 2004.
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