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Cancer Genetics SIG's Favorite Links

ONS Board of Directors
National Coalition for Health Professional Education in Genetics
National Society of Genetic Counselors
International Society of Nurses in Genetics
Myriad Genetics, Inc.
Myriad: Genetic Testing for Hereditary Cancer
City of Hope: Department of Clinical Cancer Genetics
US Surgeon General Family Health Portrait
NCCN: Guidelines for Detection, Prevention, & Risk Reduction of Cancer
Genetic Nursing Credentialing Commission
ONS Genetic Toolkit PDF
Brigham & Women's
Genetic and Rare Diseases Information Center (GARD)
Genetic Testing Pamphlet
web-based genetics education website for healthcare professionals
PDF of web-based genetics education website for healthcare professionals
DECIPHER database
PDF of Genetic Testing Pamphlet
"Useful Tools For Cancer Genetic Counselors" Must be NSGC member to access site
Secretary's Advisory Committee on Genetics, Health, and Society
Essential Nursing Competencies and Curricula Guidelines for Genetics and Genomics - Slide Set
Resource Page on public health genomics
Genetic Education Videos: Gene Screen Trough Genetic Alliance
The Value of Genetic and Genomic Technologies:


Notes from the Cancer Genetics SIG Leaders

Welcome



December 19, 2014




Cancer Genetics SIG

On this SIG Virtual Community page, you will find information pertaining the Cancer Genetics SIG. Here, you can view a myriad of resources, download and complete pertinent documents, join in our discussions and much more. Welcome to our Cancer Genetics SIG Virtual Community.

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Colon & Rectal Tumors Constitute a Single Type of Cancer

Click here for more information

Diversify Rounding Strategies to Improve Outcomes

Different types of rounding methods have different impacts on patient and staff satisfaction and clinical outcomes, so institutions that use a variety of techniques report the most positive results.

December's advanced print exclusive Clinical Journal of Oncology Nursing (CJON) article details how one institution implemented an assortment of rounding efforts on a 26-bed hematology/oncology unit and saw the overall trend of falls and pressure ulcers decrease from 2009 to 2013. Learn more about the specific strategies and how to implement them in your work setting, including

•             Patient rounds

•             Interdisciplinary collaborative rounds

•             Daily clinical rounds by the unit educator

•             Daily rounds by the unit manager

•             Quarterly unit rounds by senior nursing managers

•             Safety rounds by senior executives.

Read it before it prints. http://ons.metapress.com/content/l6m44975j2205807/fulltext.pdf 

 

 Added per ONS staff request 10/14.



Your Step-By-Step Guide to Quality Improvement

Have you ever read an article and said, "Okay, that's great, but how do I do this in my clinic?”

The groundbreaking supplement to the October Clinical Journal of Oncology Nursing (CJON) is here to help. http://ons.metapress.com/content/v84083051738/?p=a3d6f9de4f5b4063a3e152fa60ae93ff&pi=5 

•             Learn how a quality improvement pilot program improved patient satisfaction scores and reduced outpatient visits to the emergency room.

•             Use the new Patient Health Questionnaire-9 screening tool in your practice.

•             Read how a review of quality measures helped introduce change to practice and increased the number of patients assessed for fatigue

               (87% to 100%) and sleep-wake disturbances (15% to 80%).

•             Take advantage of a step-by-step approach to develop your own survivorship program.

 

Oncology nurses are obligated to help improve the quality of cancer care, and nurses at every level can have an impact. October's CJON supplement is your guide to novel and systemic approaches to assessment, screening, and interventions to adopt into practice, as well as tools, algorithms, protocols, action plans, and innovative programs to address gaps in care.

 

 Added per ONS staff request 10/14.



Oncology Policies & Procedures CD-ROM



Oncology Policies and Procedures CD-ROM
Edited by D. Esparza


Save time and money by simplifying the process of maintaining oncology policies and procedures with
more than 60 customizable templates.
Use code POPPC10 through November 1 and save 10% on your order of the Oncology Policies
and Procedures CD-ROM!
To order, visit www.ons.org/store  or contact customer service at 866-257-4ONS.

Each year, hospitals in the United States spend thousands of dollars in labor hours writing and revising policies and procedures for program accreditation. Why start from scratch when you don’t have to? The Oncology Policies and Procedures CD-ROM from ONS saves you time and money by providing a collection of current standards of practice for use in the clinical setting. Each document has a box for custom identification and policy number insertion appropriate for your institution. Simply enter your institution’s name and customize your choices and preferences, and the policy or procedure is ready to use. You can even personalize it with your institution’s logos.


The resources on the CD are divided into six sections.
• Administration
• Electronic health records
• Human resources
• Nursing
• Safety and pharmacy
• Supportive services


Each policy contains a bibliography that gives a broad view into the latest body of work for further reading and education. The human resources section also contains job descriptions to help cancer program administrators with access to roles and duties for members of the cancer team. References to certifications and national organizations for credentialing will help administrators and hiring personnel to select the most appropriate level of staff for the position.

An additional folder includes sample forms, checklists, and consent documents that can be used as is or modified for use in the clinical area.
Don’t spend another year doing unnecessary work. Get the resources you need from a source you trust.
Institutions interested in the purchase of a multiuser license should email institutions@ons.org. Pricing is based on the number of users multiplied by the regular price of the CD minus a discount based on the quantity of full-time employees identified as oncology nurses or related fields within that institution. A purchasing institution is required to provide a list of users accessing the content prior to completion of sale.


ISBN: 9781935864523 • Item INPU0645
ONS Member: $99 • Nonmember: $139
View ONS’s complete list of books at www.ons.org/store.

 

 Added per ONS staff request 10/14.



Read It Before It Prints

Each month, either the Oncology Nursing Forum or Clinical Journal of Oncology Nursing releases one of its articles online in advance of the print issue. Be the first to check it out!

Read the Oncology Nursing Forum’s http://ons.metapress.com/content/120390/?Content+Status= Accepted November advanced print exclusive article by Ellyn E. Matthews, PhD, RN, AOCNS®, CBSM, Madalynn Neu, PhD, RN, Paul F. Cook, PhD, and Nancy King, MSN, RN, CPNP®, CPON®: Sleep in Mother and Child Dyads During Treatment for Pediatric Acute Lymphoblastic Leukemia. http://ons.metapress.com/content/17522v65p1t62420/fulltext.pdf 

Evidence-Based Symptom Management Resources at Your Fingertips

From the team that has brought you the Putting Evidence Into Practice (PEP) resources since 2006 comes the first-ever pocket-sized book containing everything you need to immediately improve patient care.  Get the most current evidence-based information on 19 symptoms in this new, easy-to-carry guide.

Putting Evidence Into Practice: A Pocket Guide to Cancer Symptom Management

Edited by M. Irwin and L.A. Johnson

Use code PPEPC10 through November 1 and save 10% on your order of Putting Evidence Into Practice: A Pocket Guide to Cancer Symptom Management!

To order, visit www.ons.org/store or contact customer service at 866-257-4ONS.

Putting Evidence Into Practice: A Pocket Guide to Cancer Symptom Management updates the popular ONS PEP oncology symptom management resources into a portable pocket guide. Featuring the latest evidence on 19 symptom management topics, this book provides a quick-reference guide to help clinicians identify which interventions have demonstrated effectiveness against symptoms. The book is an essential tool for ensuring quality care of patients with cancer and was designed for easy carrying and referencing during direct patient care.

Each chapter outlines the nature, incidence, and impact of the symptom for patients with cancer; factors that create the highest risk; key aspects of assessment and identification of some assessment tools; intervention evidence; and suggestions for application in practice.

The following symptoms are covered.

•             Anorexia

•             Anxiety

•             Caregiver strain and burden

•             Chemotherapy-induced nausea and vomiting

•             Cognitive impairment

•             Constipation

•             Depression

•             Diarrhea (chemotherapy- and radiation-induced)

•             Dyspnea

•             Fatigue

•             Hot flashes

•             Lymphedema

•             Mucositis

•             Pain (acute, breakthrough, chronic, and refractory/intractable)

•             Peripheral neuropathy

•             Prevention of infection (general and transplant)

•             Radiodermatitis

•             Skin reactions

•             Sleep-wake disturbances

 

ISBN: 9781935864547 • Item INPU0650

ONS Member: $59 • Nonmember: $82.60

View ONS’s complete list of books at www.ons.org/store



NAPBC Letter Regarding Genetic Counseling

CIGNA recently initiated a policy to require genetic counseling as a requirement to genetic testing for cancer predisposition.  However, physicians and nurses were not included as approved providers for the counseling.  Attached is the American Society of Clinical Oncology (ASCO) response to this policy.  Jean Rosiak, the ONS liaison to the National Accreditation Program for Breast Centers (NAPBC) informs us that she is working with NAPBC to compose their response.



Announcements

Genetic Nurse Questionnaire with Survey Link (9/25/14)
Here is information regarding a research study that you may be eligible to participate in.

You are being asked to participate in a research study to learn about your integration of genetics/genomics into your teaching, research and/or clinical practice. The brief survey is designed to capture the demographic training and experiences and practice settings of genetic nurses. This will not only increase our knowledge, but will help us identify ways in which ISONG engages in the future.

We would be extremely grateful if you would complete the following short questionnaire. You do not have to participate in this study; your participation is voluntary and all information on this form is strictly confidential. No name or other identifying information will appear on these pages.

For more information on this study, please contact Dr. Kathleen Hickey, Assistant Professor of Nursing (Tel: 212-305-4944; E-mail: kth6@columbia.edu).

If you have any questions about your rights as a subject, you may contact the Institutional Review Board (IRB) Columbia University Medical Center at (212) 305-5883; additional information about the IRB can be accessed here: http://www.cumc.columbia.edu/dept/irb/

Below is the survey link:

https://docs.google.com/forms/d/1pZ9gTAR4j35QkPAhAwvLYe6ZSsmazIk2P4awpPaTnPM/viewform?usp=send_form

Thank you for your participation.


Unlocking Life's Code: Implications for Faculty and Healthcare Providers (9/22/14)
Program Description:
The Genome: Unlocking Life's Code is a high-tech, high-intensity museum exhibition opened originally at the Smithsonian Institution in Washington D.C. to celebrate the 10th anniversary of researchers producing the first complete human genome sequence - the genetic blueprint of the human body - in April 2003. The exhibition is a collaboration between the Smithsonian's National Museum of Natural History and the National Human Genome Research Institute of the National Institutes of Health.
The exhibition is now traveling to locations around the country with the first stop the Fleet Science Center in San Diego CA. In conjunction to launching this exhibit, the National Human Genome Research Institute is hosting a series of education programs for practicing nurses and nursing educators to highlight the value of the exhibit as an innovative teaching strategy. These education programs will present content on the relevance of genomics to healthcare, strategies for curriculum integration, resources to facilitate personal and academic genomics education and explain approaches for using the exhibit as an innovative educational resource. All sessions will end with a tour of the museum exhibit to highlight content that aids in teaching and learning.

Location:
Reuben H. Fleet Science Center
1875 El Prado
San Diego, CA 92101

Clinical Practice Sessions Dates/Times:
Tuesday, October 21, 2014 8:00AM-12N
Wednesday, October 22, 2014 12:30-4:30PM

Educator Session Sessions Dates/Times:
Tuesday, October 21, 2014 12:30-4:30PM
Wednesday, October 22, 2014 8:00AM-12N

Registration:
Please register online for the session you would like to attend at: https://www.surveymonkey.com/s/V73WCGT

Fees:
There is NO registration fee for attending this program however the each session is limited to the first 125 people who register.

CEUs:
An application for CEUs has been submitted.

For Additional Information Please Contact:
Kathleen Calzone 301-435-0538 or calzonek@mail.nih.gov

Coverage of genetic tests by TRICARE (9/12/14)
TRICARE is the Department of Defense heath care program, which provides health care coverage for medical services, medications, and dental care for military families and retirees and their and survivors. There is a new Tricare demonstration project to cover tests that have not been cleared or approved by the FDA. It is called the ‘Defense Health Agency Evaluation of Non-United States Food and Drug Administration Approved Laboratory Developed Tests Demonstration Project’.

The Defense Health Agency has announced which genetic tests Tricare will cover starting in September. A list has been published of 35 laboratory-developed tests covered under a new pilot program, from the better-known BRCA1 and BRCA2 tests for breast cancer and in-utero cystic fibrosis to tests for rare inherited disorders like Lynch syndrome and Von Hippel-Lindau disease.

The demonstration project starts Sept. 1. But if beneficiaries paid for a test on the list since Jan. 1, 2013, they may be eligible for reimbursement. They will have to file a claim to receive payment, according to a Tricare news release.

Here is a report on it:
http://www.armytimes.com/article/20140818/BENEFITS06/308180041/DoD-releases-list-genetic-tests-covered-by-Tricare

Here is the official announcement”
http://www.health.mil/News/Articles/2014/08/15/TRICARE-Set-to-Cover-Laboratory-Developed-Tests - note the last line indicates that the list of tests being covered could be expanded.

Here is the list of tests:
http://www.tricare.mil/ldt

Call for NIWI Applicants DEADLINE November 1 2014 (9/12/14)
The Nurse in Washington Internship (NIWI) Program is an annual event sponsored by the Nursing Organizations Alliance (The Alliance). With over 60 member organizations, ONS among them, The Alliance represents approximately 500,000 nurses. The Alliance sponsors the internship to promote the interests of its member groups through education, research, and health-policy activities. Over the years, more than one thousand nurses have attended NIWI, many of whom have become influential participants in the political process at state and federal levels.

The purpose of the NIWI Program is to provide nurses the opportunity to learn how to influence health care through legislative and regulatory processes. Participants learn from health policy experts and government officials and network with other nurses.

One of NIWI’s objectives is to prepare participants to be responsible nurse-citizens and to educate them about how they can affect legislative and regulatory processes. This is accomplished by an outstanding faculty, many of whom are nurses, who come from academia, research, government commissions, federal agencies, the administration, Capitol Hill, and various associations.

The next NIWI is scheduled to be held March 15 – 17, 2015 in Arlington, VA. The internship includes spending a day on Capitol Hill visiting legislators. It is hoped that the dialogue begun during the internship will continue after the interns return home.

This year, ONS is offering a limited number of grants for nurses to attend NIWI. The deadline to apply for the grant is November 1, 2014. Recipients of the grants will receive full registration for NIWI, expenses for travel, hotel and related travel expenses (e.g. meals, airport parking) per ONS Travel Policy.

Applicants must:

 Have current membership in ONS with two years minimum as a member
 Provide evidence of current activity in the legislative arena on the local, state, and/or national levels
 Describe all past ONS activities
 Describe how the internship experience will help his or her current professional role, and within ONS
 Be willing to serve as a chapter or SIG legislative liaison
 Demonstrate strong communication skills
 Demonstrate willingness to participate in NIWI by meeting the time requirements for preparation

A review panel will select the most qualified applicants. To apply, members should submit a letter stating that they are applying for a NIWI grant, including three copies of all accompanying information listed above, and current curriculum vitae to:

Health Policy Team
Oncology Nursing Society
125 Enterprise Drive
Pittsburgh, PA 15275

If you have any questions, please feel free to contact ONS Health Policy Director, Alec Stone, at 1/866-257-4ONS x6401 or astone@ons.org.



New online education on cancer risk assessment from The Jackson Laboratory (7/1/14)
This is a free, online educational program that helps health care providers improve their cancer risk assessment and prevention practice through targeted family history screening. The program is for practicing primary care providers as well as students and residents. Highlights of the program include:
• Strategies to use family history to identify patients at increased risk of a genetic syndrome, such as hereditary breast and ovarian cancer, for earlier or more frequent cancer screening.
• Application of new USPSTF guidelines recommending family history screening for all patients with a family history of breast and ovarian cancer.
• Learning through 15-minute interactive Web cases and downloadable point-of-care tools that can be used in the clinic.
• Free CME.

Here is the link to the web program (www.jaxge.org).



Surgeon General's New Family Health History Tool

On January 13, 2009 the U.S. Department of Health and Human Services released an updated and improved version of the Surgeon General's Internet-based family health history tool.  Read more about the history tool.



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2014 SIG Leadership Workshop

 

Pre-Work:

Presentations:

Documents:



SIG Posters for Congress

Need help creating a poster for your SIG for Congress? Check out these great resources and templates to share the work of your SIG!

Also, a ONS Poster Guide was developed with some great tips.

ONS will reimburse each SIG $100 to print and display a poster at Congress. This is a great opportunity to share the activities and goals of your SIG with the membership. The following is a listing of printers who charge reasonable rates for printing posters.

PosterPresentations.com

MakeSigns.com

PosterBrain.com

Place poster print via your local FedEx Kinko’s and have the order processed at the FedEx Kinko’s nearest Congress. 

Use the QR code maker for your poster 1) SIG Leadership Contact information 2) 2nd QR delivers a link directly to the SIG Virtual Community and the poster.

The following is a listing of templates and tips:

Poster Sample from ONS with Tips and Recommendations

Template for a 36"x60" Poster

Template for a 36"x72" Poster

Template for a 30'x40" vertical Poster



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