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Cancer Genetics SIG's Favorite Links

ONS Board of Directors
National Coalition for Health Professional Education in Genetics
National Society of Genetic Counselors
International Society of Nurses in Genetics
Myriad Genetics, Inc.
Myriad: Genetic Testing for Hereditary Cancer
City of Hope: Department of Clinical Cancer Genetics
US Surgeon General Family Health Portrait
NCCN: Guidelines for Detection, Prevention, & Risk Reduction of Cancer
Genetic Nursing Credentialing Commission
ONS Genetic Toolkit PDF
Brigham & Women's
Genetic and Rare Diseases Information Center (GARD)
Genetic Testing Pamphlet
web-based genetics education website for healthcare professionals
PDF of web-based genetics education website for healthcare professionals
DECIPHER database
PDF of Genetic Testing Pamphlet
"Useful Tools For Cancer Genetic Counselors" Must be NSGC member to access site
Secretary's Advisory Committee on Genetics, Health, and Society
Essential Nursing Competencies and Curricula Guidelines for Genetics and Genomics - Slide Set
Resource Page on public health genomics
Genetic Education Videos: Gene Screen Trough Genetic Alliance
The Value of Genetic and Genomic Technologies:


Notes from the Cancer Genetics SIG Leaders

Welcome



September 5, 2010




Cancer Genetics SIG

 On this SIG Virtual Community page, you will find information pertaining the Cancer Genetics SIG. Here, you can view a myriad of resources, download and complete pertinent documents, join in our discussions and much more. Welcome to our Cancer Genetics SIG Virtual Community.

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Announcements
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Graduate Competencies Draft Posted on ANA Website

Dr. Carol Bickford, Senior Policy Fellow with the American Nurses Association's  Department of Nursing Practice and Policy, informed us that the "Essential Competencies in Genetics and Genomics for Graduate Nurses" draft document is now posted on the American Nurses Association website for public comment. The draft document link  is posted at www.nursingworld.org  The specific link for the document itself can be found at

http://www.nursingworld.org/HomepageCategory/NursingInsider/Comments-Graduate-Essentials-Genetics.aspx       

 

The closing date for public comment is September 24, 2010. Comments are to be directed to karen.greco@nih.gov



Announcements

2 new articles on DTC genetic testing (9/2/10)
See both links below. Both are from the new publication "Value-Based Cancer Care" (www.ValueBasedCancer.com)

New Tests, Genomic Information Change Physician Role available at http://www.valuebasedcancer.com/article/new-tests-genomic-information-change-physician-role?utm_source=Value-Based+Cancer+Care&utm_campaign=60dc83fa44-RSS_EMAIL_CAMPAIGN&utm_medium=email

A Little Genetic Information is a Dangerous Thing available at http://www.valuebasedcancer.com/article/little-genetic-information-dangerous-thing?utm_source=Value-Based+Cancer+Care&utm_campaign=60dc83fa44-RSS_EMAIL_CAMPAIGN&utm_medium=email

upcoming webinar on cancer genomics on September 14th (8/31/10)
Cyber-Seminar Series > Genomics and Cancer Control: What to Know and What to Do

Tuesday, September 14, 2010, 2:003:00 p.m. ET

Seminar Summary

Genomics plays a role in nine of the ten leading causes of death in the United States, most notably cancer. Understanding how genes interact with environmental and behavioral risk factors, such as diet and physical activity, is central to cancer control and prevention efforts.

While the science of public health genomics continues to evolve, great strides in knowledge have been made. This interactive session will describe the science behind genomics and cancer control and prevention and illustrate practical strategies to incorporate genomic technology and genetic testing into public health programs.

The Centers for Disease Control and Prevention will explain the science behind public health genomics, describe new resources available to guide practitioners, and unveil new content available on Cancer Control P.L.A.N.E.T.

The Michigan Department of Community Health has sought creative ways to implement evidence-based public health genomics recommendations into their states health policy, education, and surveillance programs. Leaders from the department will speak about their experiences and lessons learned.

Learning Objectives:

At the end of the cyber-seminar, participants will be able to:

· Describe the evidence-base behind cancer genomics

· Identify available resources for evidence-based genomics recommendations

· Describe strategies used to implement evidence-based genomics in practice for cancer control and prevention

· Discuss lessons learned, successes, and ongoing challenges

register for the seminar on the Cancer Control Planet website: http://ccplanet.cancer.gov/cs_genomics.html .



Funding for Neuro-Oncology Nursing Research or rehabilitation nursing research (8/31/10)
Apply today for one of the $10,000 special grants through the 2011 ONS Foundation Small Grants Program

ONS Foundation/American Brain Tumor Association Neuro-Oncology Nursing Research Grant Designed to encourage nursing research in symptom management, support systems, or quality of life in people with brain tumors and their families. The PI must be actively involved in some aspect of neuro-oncology patient care, education, or research.

ONS Foundation/Rehabilitation Nursing Foundation Rehabilitation Nursing Research Grant

Designed to advance rehabilitation nursing in patients with cancer.

For all small grants, funding preference is given to projects that involve nurses in the design and conduct of the research activity and that promote theoretically based oncology practice. Membership in ONS is not required for eligibility. This $10,000 award is given at the beginning of the award period; the researcher has two years to complete the study.

Deadlines

Letters of intent are due September 1

Applications are due October 1

For more information and instructions, visit the ONS Foundation Website at:

Neuro-Oncology Research Grant: http://www.ons.org/Awards/FoundationAwards/NeuroOncology

Rehabilibation Research Grant: http://www.ons.org/Awards/FoundationAwards/Rehabilitation

check out GINAhelp.org (8/31/10)
GINAhelp.org is a site available that provides information on the Genetic Information Nondiscrimination Act.

IOM Releases New Report - The Value of Genetic and Genomic Technologies (8/24/10)
The Roundtable on Translating Genomic-Based Research for Health is pleased to announce the release of their latest report.



The Value of Genetic and Genomic Technologies


Knowing one's genetic disposition to a variety of diseases, including common chronic diseases, can benefit both the individual and society at large. The IOM's Roundtable on Translating Genomic-Based Research for Health held a workshop on March 22, 2010, to bring together diverse perspectives on the value of genetic testing, and to discuss its use in clinical practice.

The report is available online as a free PDF. Hard copies will be available in October.





Surgeon General's New Family Health History Tool

On January 13, 2009 the U.S. Department of Health and Human Services released an updated and improved version of the Surgeon General's Internet-based family health history tool.  Read more about the history tool.



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Request for Information (RFI) on the NIH Plan to Develop the Genetic Testing Registry

Comments are being requested ASAP in regards to the NIH plans for a genetic testing registry.  Please visit the link below for details about the proposed data elements. http://grants.nih.gov/grants/guide/notice-files/NOT-OD-10-101.html  and additional details at http://www.ncbi.nlm.nih.gov/gtr/

Please make sure your voices are heard so that appropriate information is available to inform your patients decisions.

Background

The last decade has seen tremendous advances in our knowledge of the genomic and genetic factors involved in health and disease.  This increased knowledge has been accompanied by a rapid rise in the availability of genetic tests.  Although more than 2,000 genetic tests are available, there is no single public resource that provides information about the validity and usefulness of these tests.  The NIH believes that transparent access to such information is vital to facilitate research and to enable informed decision making by patients, caregivers, health care providers, clinical laboratory professionals, payers, and policy makers.  Therefore, the NIH is initiating the development of the GTR, an online resource that will provide a centralized location for researchers, test developers, and manufacturers to voluntarily submit information about genetic tests such as their intended use, validity, and utility.  The Registry will serve as a resource for health care providers and patients interested in learning about the tests and easily locating laboratories offering particular genetic tests.  By using standard identifiers for genetic tests, GTR can facilitate Health Information Technology (HIT) exchange.  The GTR will be a repository of information about genetic tests, not a repository of test results.

On March 18, 2010, the NIH announced that it would be creating the GTR (see http://www.nih.gov/news/health/mar2010/od-18.htm).  This RFI notice is part of the public consultation process referenced in that announcement and described on the NIH GTR website: http://www.ncbi.nlm.nih.gov/gtr/.



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